I recently got a new wheelchair! Thanks to the good folks at Numotion, I’m happy with the upgrades, including a new seat cushion, a phone holder, and headlights. My friends have been asking me what it’s like to be in a new chair, and I’d say it feels like getting…
Read more
Biogen is very pleased with the “striking” results seen thus far in clinical testing with its therapy candidate salanersen — designed to have high efficacy in people with spinal muscular atrophy (SMA) — and is engaging with health authorities on the design of further trials that might provide…
August is Spinal Muscular Atrophy (SMA) Awareness Month where community members will join together on behalf of patient advocacy and research funding to help find a cure for the rare genetic condition. “August is our time to shine a brighter spotlight on the needs, wants, hopes, and experiences of…
Life for our family has never been dull, but after our fortuitous move to the North Carolina mountains, “never dull” acquired new meaning. A blizzard hit a week after our arrival, flying squirrels gnawed their way into our dining room, and snow kept students hunkered down at home at least…
“I’m feeling a bit Muppety today.” It’s an adjective I made up for myself years ago (meaning “like a Muppet”) because there are just some aspects of having a neuromuscular disability that are hard to describe and explain. But as they say, if you know, you know. Consider the…
The new “Superman” movie features talking robots, giant monsters, interdimensional portals, and a crowd-pleasing, super-powered canine. Multiple heroes and villains factor into the story, and the action sequences involve a plethora of CGI-heavy special effects. It’s a big and fantastical summer blockbuster, the kind of spectacle that the superhero genre…
Get regular updates to your inbox.
